Author has written 11 stories for Life, Love, Family, and General.
When talking about my interests I have been called a "Renaissance woman." I have broad interests in both arts and science.
I have what's called Myalgic Encephalomyelitis, also commonly and improperly referred to as Chronic Fatigue Syndrome, which in itself is complicated and has in turn complicated my life greatly and strained all of my relationships.
I love to debate and discuss everything from arts to science; philosophy, psychology and politics in particular.
Currently, I'm building my life. When I got M.E. my whole perspective on life was turned upside down. I've had to do some serious introspection, and retrospection, to decide what's important to me and my life now. Right now I'm back to the basics, just building a foundation for my life. I'm sort of going through a rebirthing process. It's all I've really been left with. Right now, I think about life, my life, and I read and discover things about the rest of the world; Whether through googling, magazines, or TV, I have learned quite a bit during this reflection time of my life. I'm working on living in the moment, because M.E. has fogged up most of my memory. I say "fogged up" because it comes back from time to time- but there are a lot of times when I can't remember anything from the last six years, or from yesterday, sometimes I even forget about what happened a few minutes ago.
I spend a lot of time thinking about:
The World and its complexities. The intricate pieces that make our world what it is, that make it so troubled and so difficult, that make it so wonderful. The depth of our societies and cultures, how religion is so deeply embedded into modern culture. I think about how we've dedicated so much energy and ingenuity over time to violence and ways to make killing easier and what profits came of it.
What's truly important to me- what matters in the grand scheme of life. I think of the kind of person I want to be, the things I want to be able to do, the things I want to try. I think of the things that I want in my life, the kind of people I want in my life. I think of how to make these things a reality.
I think about the places I want to go, the things I want to see. The things I want to accomplish.
I think about a lot of things. I think about the novelties of life, the uniqueness, the complexities, everything that comes to mind I explore.
Though it is not rare, not many people know about M.E., and there is no government spending on M.E. research anywhere in the world. And while there are tests and criteria, most people go without diagnosis for years, and are usually referred to psychology, while prolonging the time without knowledge of proper actions and precautions to take, thus progressing the disease (my own personal experience and the experience of a couple of friends).
"Myalgic Encephalomyeletis is an acutely acquired neurological disease initiated by a viral infection with multi system involvement. What defines M.E. is a specific type of acquired damage to the brain (the central nervous system) caused by said virus (an enterovirus).
The term M.E. means: My= muscle, Algic = pain, Encephalo = brain, Mye = spinal cord, Itis = inflammation. This neurological damage has been confirmed in autopsies of M.E. patients.
There are more than 64 individual symptoms of M.E. recorded.
Encephalomyelitis can be more disabling than MS or polio, and many other serious diseases. M.E. is one of the most disabling diseases there is. More than 30 of M.E. patients are housebound, wheelchair-reliant and/orand are severely limited with even basic movement and communication.
Why are Myalgic Encephalomyelitis patients so severely and uniquely disabled? For a person to stay alive, the heart must pump a certain base-level amount of blood. Every time a person is active, this increases the amount of blood the heart needs to pump. Every movement made or second spent upright, every word spoken, every thought thought, every word read or noise heard requires that more blood must be pumped by the heart.
Personally, I'm no where near dying (That I know of...). However, I am housebound and mainly wheelchair-reliant, I do and/or have had a majority of the possible symptoms, and I fit the description quite well.
One day I would like to write directly about my experiences, but it takes quite a lot of energy, and I am recovering slowly.
If you have any questions about M.E. or my personal experiences, please ask. I will not be offended.
Most (but not all) of my work reflects my journey through M.E., its effect on me, my life and my relationships. I would love to answer any questions you may have about my writing. Should you have some constructive criticism I would love to hear some objective opinions so I may better my writing now and in the future.
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